Welcome to Project Scleroderma!
Project Scleroderma’s primary mission is to raise the global level of Scleroderma awareness and to encourage support of Scleroderma research. The organization’s goal is to help give Scleroderma patients a platform to voice their stories and an opportunity to champion for their cause.
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The clip below is a trailer from our recently completed documentary film, “Beneath The Surface”. Our intention is to use this documentary as a tool to educate as well as to generate a larger level of support for Scleroderma Research.
UPDATE: THE FILM IS NOW AVAILABLE TO STREAM OR PURCHASE AT WWW.SCLERODERMAFILM.COM
Narrated by Bob Saget, Project Scleroderma: Beneath The Surface is a film that documents the grass-roots mission of a young woman from Philadelphia working to raise awareness for a scarcely known disease that took her mother’s life. In this highly inspirational and hopeful story, viewers follow Christy McCaffrey as she works diligently to create a global movement to rally behind the patients who are suffering from this terrible disease.
With the help of social media outlets, Christy connects to Scleroderma patients all over the world offering them a voice in this film as a platform to champion for their own cause. The film is an intimate look into the everyday struggles and painful setbacks of Scleroderma patients blended with highly educational details about the disease from leading doctors and researchers to illustrate the primary message: “Scleroderma awareness simply cannot wait.”
Scleroderma is a type of autoimmune disorder, which is a condition that occurs when your immune system mistakenly attacks and destroys healthy tissue. It is a group of progressive diseases that involve the hardening and tightening of your skin and connective tissues, which are the fibers that provide the framework and support for your body, along with changes in the skin, blood vessels, muscles and internal organs.Continue reading