In our continued commitment to provide support for the scleroderma community, Project Scleroderma teamed up with Scleroderma Strong founder, Jessica Massengale, to create a brand new series called “This Is How I”! Jessica hosts the series offering up a bundle of great tips and coping strategies that she has picked up along the way in her own journey with scleroderma. The first three videos in this series can be seen NOW on the PS Mobile Health Library App! Download the app today!
Click for a sample of the video:
Project Scleroderma Patient Support Application
In 2016, our Project Scleroderma team expanded our focus beyond the awareness component, and began to brainstorm new and innovative ways of helping scleroderma patients. This led to the creation of an interactive and evolving tool for the scleroderma community, the Project Scleroderma Patient Support App.
This app is available globally for scleroderma patients to download for free via the App Store, Google Play and Kindle Fire.
The main purpose of the app is to simplify the daily experience for scleroderma patients as they tackle every day challenges, to help ease the emotional stress that is a part of chronic illness and to help patients newly diagnosed to better navigate this new and often times overwhelming diagnosis.
App features allow patients to track and chart their symptoms on a daily basis and keep a running diary of notes to share with their physicians. It will serve as a hub of patient resources, offering them a connection to global scleroderma related organizations for support and will also serve as a hub for Project Scleroderma’s ongoing educational videos as well.
Please contact us with any questions or comments.