Project Scleroderma | Project Scleroderma Blog
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Project Scleroderma (a 501 c 3 Non Profit) has a primary mission to raise the global level of scleroderma awareness.

BLOG

Through each important story,
Project Scleroderma focuses on creating a
platform for patients, and their 
family and friends
dealing with the effects of Scleroderma in an effort
to foster a supportive environment driven
by strength in community. If you would like
to share your story please contact us. 

  • Lisa’s Story

    By: Christy McCaffrey November 11, 2015 “I am Lisa Wilson – Paramedic, girlfriend, daughter, aunt, friend, and so much more. I am not a disease. I am a fighter, and we can all win this!!” Lisa Wilson is a 36-year-old woman from Columbus, Ohio who......

  • Rachel’s Story

    Rachel Schultz is a 42-year-old wife and mother from Saratoga Springs, NY. She and her husband Jim have been married for 17 years and have a 22-year-old son and a 16-year-old daughter. Rachel is also the proud grandmother of a beautiful 2-year-old girl who she......

  • Joey’s Story

    Joey Barlow is a 43-year-old woman from Chester County, PA. She is the proud mother of two teenage sons, Tyler, 18 and Jake, 16. This past November Joey married a long time friend, Tim, who she describes as a “wonderful, patient and loving man.” And,......

  • Jennifer’s Story

    46-year-old Jennifer Hulme was born and raised in Annapolis Valley, Nova Scotia, where, in her junior year of high school, she met her future husband Steve. Jennifer and Steve have now been together for 30 years and married for the past 18 years. The couple......

  • Cat’s Story

    Cat Gibbons is a 49-year-old woman from Connecticut who was diagnosed almost 10 years ago, just shy of her 40th birthday, with Scleroderma. Cat’s diagnosis came after years of symptoms that went misdiagnosed. Cat’s doctor, convinced that the symptoms she suffered from were the result......

  • Briana’s Story

    Briana Garcia is a 33-year-old wife and mother from Stoneham, Massachusetts. Three years ago Briana was diagnosed with Systemic Scleroderma. Three years prior to her diagnosis Briana gave birth to a baby girl. In the first three years of her daughter’s life, Briana was a......

  • Lauren’s Story

    “My entire life I always felt a little different. Even when I was a child it just seemed that everything was physically much easier for everyone else than for me.” After finally reaching a diagnosis to explain the symptoms she had battled most of her......

  • The Voice of a Scleroderma Patient

    Hello everyone! It has been a while since I have shared a blog post with you all, please forgive my absence, but I have a good excuse! On September 14, 2013, my husband and I welcomed our first child, a baby boy, Shane Patrick.  We......

  • Overcoming the Obstacles

    Andrea Matis is a Scleroderma patient from Southern California who has been living with the disease for the past 30 years. Andrea’s diagnosis, like many other Scleroderma patients, began with little knowledge of the disease and with that a great fear of the unknown as......

  • Applying for Social Security Benefits

    Applying for Social Security Disability Benefits with Scleroderma By:  Ram Meyyappan                                                   September 30, 2013 Social Security Disability Help www.disability-benefits-help.org/blog Scleroderma......

  • Nearing the Finish

    It is amazing to see the progress that has been made thus far in the “Project Scleroderma: Beneath The Surface” journey. As we are close to sharing our documentary film with the world, it feels as though a new and exciting beginning is on the......

  • Catching Up with Project Scleroderma

    In the beginning, all Christy knew was that she wanted to do something to raise awareness of Scleroderma. But, exactly what – she had no idea. A new and creative approach was of great importance along with as immediate an impact as possible. The answer......

  • Moving Forward

    The Project Scleroderma team’s recent trip to Baltimore has left us more enthused than ever about the progress, purpose and direction of our project as well as our collaboration with the Scleroderma Research Foundation. On August 15th we met for the first time with the......

  • The First Year of Project Scleroderma

    Just one year ago, three people sat down for a casual discussion about creating a documentary for the purpose of raising awareness for a disease even they knew little about. Although knowing this would certainly be a time-consuming and difficult task, they were up for......

  • Social Media Impact

    I think we can all agree that social media has greatly impacted the ways in which we interact with each other on a daily basis. As the prevalence of this new phenomenon in communication continues to rise, it is becoming increasingly more apparent that social......

  • Welcome

    Welcome to Project Scleroderma! Please feel free to take a look around our site and get to know the Project Scleroderma experience. This is a project that we encourage you to be a part of. Our goal is to raise awareness for Scleroderma Research through......

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