Project Scleroderma | The First Year of Project Scleroderma
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The First Year of Project Scleroderma

Just one year ago, three people sat down for a casual discussion about creating a documentary for the purpose of raising awareness for a disease even they knew little about. Although knowing this would certainly be a time-consuming and difficult task, they were up for the challenge. Little did they know then that their vision would inspire a global call to action.

This was our team and it is amazing to see the progress that has taken place because of this grassroots mission in such a short period of time. Personally, I can say that this project was very daunting in the beginning, most especially because I had no idea what I was doing or getting myself into. But, it’s amazing how passion and creativity work. A person may know very little about how to act on this passion, but it is the driving force behind figuring things out along the way. I learned this as I journeyed down the path to understanding what it takes to make a dream possible and, now, the team and I are living the vision we set out to achieve.

In June 2011, JC Costa, Bill Connell and I sat on the couch in my living room brainstorming about our aspirations for this project. After our discussion we decided that, in order for this film to be effective, it was imperative we partner with a larger organization involved in the cause, come up with a plan to raise funds in a new and innovative way, and create a community of supporters for the project.

Flash forward to June 2012. We just completed a 35-day online fundraising campaign, which raised $30,000. We created a global network of patients and supporters, all rallying to accomplish one common goal – awareness and support for scleroderma research. We were also able to achieve the extremely important objective of gaining the attention and respect of the Scleroderma Research Foundation.

Today, our journey continues. And, we are so grateful to every single one of you who contributed to our fundraising campaign and who continue to support us as we move forward in our efforts to create change and everlasting awareness of scleroderma. This would be a far more difficult process for us if we did not have your love and support. Thank you!

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